When we lived in San Marcos we attended a small Independent Bible Church called Grace Bible Church. Our pastor & his wife, Tommy & Sue, have retired from the church but work as missionaries in Montana. Their eldest daughter, Joanna, had a baby, Effie May O'Brien, earlier this month who has Trisomy 13. Here is the Wikipedia info: Trisomy 13
Jeff & Joanna also have a daughter Corinna who is, I believe, about 2.
Today we got a letter from Tommy & Sue that is just heart wrenching. This baby's heart has stopped and she's been revived multiple times. They wrote that Lori says it's like watching her die over and over. I'm sure every day is a battle for life. Please keep this precious family in your prayers.